Chlamydia Pneumoniae infection as a possible rosacea cause
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Joined: 08 Jan 2007
Location: new york
| Posted: Tue Feb 05, 2008 2:20 am Post subject: Chlamydia Pneumoniae infection as a possible rosacea cause | |
| I have been reading all about cpn and how it could be a cause of a number of chronic diseases. It makes a lot of sense and I wanted to share it with you guys and see what you thought.
Dan from the support group has been going through the treatment protocol for this now since 2006 and is doing great. http://www.cpnhelp.org/cpn_treatment_for_rosacea http://www.cpnhelp.org/node/2070 http://health.groups.yahoo.com/group/rosacea-support/message/93555 and http://rosacea-research.org/wiki/index.php/Chlamydia_pneumoniae I feel as this is the info we have been searching for in order to actually treat and rid ourselves of rosacea vs. just treating the symptoms. I would be interested to hear any thoughts about this. Thanks, Melissa |
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Joined: 23 Jul 2005
| Posted: Tue Feb 05, 2008 4:01 am Post subject: | |
| It's an interesting theory. Unfortunately diagnosis is difficult, and the treatment rigorous. Personally, I would be hesitant to embark upon a treatment regimen without some lab tests confirming the infection.
We don't even need specialized rosacea/Cpn research... I assume it's already being investigated for the other diseases it causes. One day when they find an easy way to kill it, all the rosaceans can try it and if rosacea disappears from the face of the earth, then we know it was the real cause. _________________ KNOWLEDGE = POWER |
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Joined: 30 Mar 2007
| Posted: Tue Feb 05, 2008 7:12 am Post subject: | |
| tried dual antibiotics (2 different kinds that targets the Pne Chlam in the different stages of its life) along with the supplement called NAC for about 3 months, saw no improvement whatsoever.
I have permanent redness and flushing. granted i didnt check if i had the the bacteria in the first place, but oh well, kinda strange that the antibiotics didnt help at all though. |
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Forum Moderator
Joined: 08 Jan 2007
Location: new york
| Posted: Tue Feb 05, 2008 10:56 am Post subject: | |
| Hi Mr. L,
It seems as if treatment takes a lot longer than 3 months. What antibiotics and what dosages were you on? Did you have any bad reactions to the antibiotics and the NAC? Have you read the cpn.org website? http://www.cpnhelp.org/caps http://www.cpnhelp.org/patient_stories With this treatment the antibiotics are pretty specific and aimed at all the life cycles of the chlamydia pneumoniae. As Steve wrote the treatment is pretty vigorous. And you probably will get worse before you get better. I am going to be discussing this with my doctor at my next visit and see if I can convince him to try the protocol on me. If you don't have the severe reaction to the treatment than it might mean you never were infected with the cpn to begin with. I also understand that testing for cpn is difficult so I am hoping I can convince him to let me begin treatment without the testing. It certainly seems perferable to try a treatment from within that may actually eradicate rosacea and any other diseases than just to try and treat the symptoms forever. Steve, is there any negative to trying this protocol? From my reading it seems as if it could only help. I understand that the die-off reaction of the bacteria and their endotoxins can produce pretty serious reactions but once you get through that... And you can take it slow. Best wishes, Melissa |
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Joined: 28 Oct 2007
| Posted: Tue Feb 05, 2008 12:37 pm Post subject: | |
| I believe that from what I've been reading ( same stuff as Melissa) that cpn may be a factor in many cases of rosacea , however I'm sure there are others. I think that other treatments such as ipl will still be necessary to clear up the excess and damaged blood vessels which have occurred aready.
Good luck with your doctor Melissa. |
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Joined: 11 Nov 2007
Location: Netherlands
| Posted: Tue Feb 05, 2008 1:19 pm Post subject: | |
| Interesting! A lot of info to read... Maybe you can clear some things up for me.
So, cpn starts off with a respiratory infection, or am I wrong here? Can I then state that people with rosacea have probably had some sort of respiratory infection in the past? (I know I have). Can anyone tell me something more about the symptoms? I can't seem to find a list with symptoms associated with cpn. _________________ Currently on Finacea and Xyzal |
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Forum Moderator
Joined: 08 Jan 2007
Location: new york
| Posted: Tue Feb 05, 2008 10:58 pm Post subject: | |
| Hi Angela,
Your symptoms depend on the individual. When you read all the info you can see that it varies. For rosaceans for example the chlamydiae pneumonia can cause flushing/burning and/or papules/pustules. The reaction depends on where the bacteria is causing trouble. It is a lot of info. Take your time when you get a chance and see what you think. The scientists are finding new things out every day but this theory makes a lot of sense to me. Plus, Dan from the RSG who is a highly respected and trusted member is doing great with the treatment protocol. I would guess that not everybody with rosacea is infected with CPN but it certainly wouldn't hurt to be tested and do the treatment if you test positive. After all, chlamydia pneumoniae can cause major trouble in the body that can manifest itself in different ways. MS, CFS, fibromyalgia, IBS, RA, rosacea are just a few examples. This bacteria is very difficult to get rid of and can have devastating effects on our health. Best wishes, Melissa |
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Joined: 28 Aug 2006
| Posted: Wed Feb 06, 2008 12:01 am Post subject: | |
| I only have one problem with many of the difficult diets and meds and high dose supplements with anyone's "theroy" of a cure for rosacea being linked to a infection of some sort or another.....
the problem......there are others that have gotten "cured" of their rosacea and moved on and never did any of this stuff. Dr. Nase, the lady I know from the old board, Irishgenes (thru HRT)....there are other's I just can't think of them right now. I did so many of the diet changes, supplements and so on and never saw any change in my rosacea what so ever. This is the very confusing part.....a person gets "cured or remission" while boat loads of others do the same thing and see no improvement let alone remission. _________________ Dx 1998 No meds Used low-dose accutane successfully |
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Forum Moderator
Joined: 08 Jan 2007
Location: new york
| Posted: Wed Feb 06, 2008 12:49 am Post subject: | |
| Hi Darlene,
First of all, Nase is not cured. Second of all, there is no one cure all for everyone since there are probably different causes BUT if you are infected with cpn it could very well manifest itself as rosacea. Or Multiple Sclerosis, or Chronic Fatigue Syndrome . You get the point. The key is to find what's causing your rosacea (if you can) and only then can you treat the cause and not just the symptoms. Which all of us have been doing...basically just treating the symptoms. In Irishgenes case she found her cause which she then treated. And that gives us all hope! Best wishes, Melissa |
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Joined: 23 Jul 2005
| Posted: Wed Feb 06, 2008 3:41 am Post subject: | |||
I've only browsed through the treatment protocol, but it seems like negatives would be: time, energy, money, risk. First, there's not a definitive test for Cpn so you're proceeding under an assumption only. Then you have to find a doctor willing to prescribe mulitple antibiotics (which you have to pay for.) And you're doing the treatment for at least a year, possibly up to 5. 5 years is a long time. And if you start to get bad side-effects and have to stop treatment, you drop back to square one and have wasted a lot of time and money. Basically, it's a big, expensive, long-term treatment for something you're only guessing you have in the first place. On top of that, I believe Cpn infection is not really uncommon... so even after the 5 year treatment, what's to stop you from catching it again? You treat yourself for 1-5 years, finally eradicate it, stop treatment, and catch it again the very next day (that would be my luck.) But personally, if I saw evidence that I did indeed have this parasite, I would begin treatment ASAP. These things are energy parasites, which freaks me out. _________________ KNOWLEDGE = POWER |
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Joined: 04 Dec 2006
| Posted: Wed Feb 06, 2008 4:48 am Post subject: | |
| Melissa,
Thanks for posting this. I haven't read through all the links, yet enough to be intrigued. I've had both fybro and chronic fatique in the past and also had a very nasty virul infection that effected my respiratory system prior to my flushing becoming much worse several years ago. Interesting. Please update us on how it goes with your doctor. Thanks, Grace |
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Forum Moderator
Joined: 08 Jan 2007
Location: new york
| Posted: Wed Feb 06, 2008 11:02 am Post subject: | |
| Hi Steve,
The best way to have a cpn test is to get your doctor to have you tested with an Antibody Test for Chlamydia pneumoniae. Dr Stratton said the Mayo Clinic did a good job with antibody testing for Cpn so I am going to try and have my doctor submit the test there. If I do test negative though, I still could have Cpn. I may not show positive antibodies until I have been challenged with the antibiotics. I am willing to put in the time, energy and money if this is the problem. I am worried about the chance I won't test positive and still have the cpn. That will be the roadblock for me as I am sure my doctor will not start me on this protocol unless I test positive. Hi Grace, I am not seeing him until end of February but will keep you posted. In the meantime, when you get a chance, read through the links. I think you will find it very interesting. Best wishes, Melissa |
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Joined: 23 Jul 2005
| Posted: Sat Feb 09, 2008 4:56 am Post subject: | |||
It looks like treatment would have to be neverending, due to reinfection. _________________ KNOWLEDGE = POWER |
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Forum Moderator
Joined: 08 Jan 2007
Location: new york
| Posted: Sat Feb 09, 2008 1:41 pm Post subject: | |
| I don't think so. Once you have eradicated the cpn you become more resistant to becoming reinfected. I believe that's true. I know that David Wheldon (the originator of the Wheldon protocol) has completed treatment and is off the antibiotics and I think his wife is as well but I'm not 100% sure on that point.
If our rosacea is due to cpn and during the treatment we have the die off reactions and then we start getting clearance of our p&p's and flushing and burning we would know it is cpn or some other pathogen sensitive to the antibiotics. And then once we completed treatment we would know if we were reinfected again if the symptoms returned and would begin the less severe treatment (not all of the antibiotics would be necessary as it would be before the late stage infection this time) and get clearance more easily. Anyway, that's how I understand it and remember there are not a lot of statistics on this especially pertaining to rosacea so we just don't really know how to predict what would happen in the future. I do know though that if some people's rosacea is due to cpn infection the only way to treat/cure it would be this antibiotic protocol. CPN is a difficult PITA to eradicate and requires a multi-antibiotic approach. Rosacea due to cpn certainly cannot be cured in any other satisfactory way. All the other treatments are just dealing with the damage once it's done so to speak and putting a bandaid on the problem. An interesting theory for sure and if you read all the links and the patient testimonials I think you might see that it does have credibility. Best wishes, Melissa |
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Joined: 18 Jan 2007
Location: western new york
| Posted: Sat Feb 09, 2008 4:23 pm Post subject: | |
| I can't see how this treatment would fit into someones life without being independantly wealthy, or have weeks of sick time accumulated so you can take days off because of die-off reactions. Not to mention the length of time involved in treatment... I could see getting discouraged during the process. | |
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