How do you go on?
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melissawohl Forum Moderator

Joined: 08 Jan 2007 Location: new york
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| Posted: Sun Feb 10, 2008 1:58 am Post subject: |
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That's how I took the question as well Corinna.
That's what we are all here for. To share info and help support others with advice and ways to manage the rosacea as well as strategies for being able to enjoy life while having rosacea.
Corinna wrote | Quote: | I read the question as more of a 'hope do you cope?' kind of inquiry.
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Best wishes,
Melissa |
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Lookout
Joined: 28 Aug 2006
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| Posted: Sun Feb 10, 2008 2:07 am Post subject: |
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| jhnnygdy wrote: | "How do you go on?"
I'm not sure that kind of talk benefits anyone... |
repressing ones feelings is not good....her question is very valid...and appropriate!
There are good days and bad ones.....as you find things that work for you and ways to conceal the redness you will feel better and hopeful that your future is bright and worth all the struggles you are going thur right now....HTH _________________ Dx 1998
No meds
Used low-dose accutane successfully |
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Sdavis
Joined: 30 Jan 2008
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| Posted: Sun Feb 10, 2008 11:00 pm Post subject: How do you go on |
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I know what you are feeling. I had beautiful skin and a day did not go by that people did not give me compliments. It first started with being sensitive to certain make up. Then I would switch make up. Then I develped adult acne. Then I got that under control with a candida detox and change in diet. Then flushing came and then rosacea. My rosacea was bad but not awful. Today I am 36 with a mild case of rosacea. Right now I have no redness. I am very careful with the food I eat and the make up I use. But of course my skin is not where I want it to be. I had one session of Pulsed Dye Laser Treatment, but I can't keep doing that. It is $500.00 a session.
I would encourage you to educate yourself about Rosacea. Watch your diet and use the appropriate cleansers and make up. Make sure you do not have any food allergies, food sensitive issues, food intolerances, digestive problems, your ph is in check... everytime you get a flush or more redness remember what you ate or what you do that might have brought it on.
If you want any advice on cleansers or make up and my issues with food allergies and my candida battle e-mail me.
you are going to be ok but it will take effort on your part. Your skin is going to calm down i guarantee it! |
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qscott86
Joined: 04 Feb 2008
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| Posted: Mon Feb 11, 2008 12:02 am Post subject: |
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First of all, i'm a male.
Secondly, i wrote this topic about how people looking forward to living when they are so affected by this disease. frankly, somedays i feel like just giving up and ending it all .. i'm not trying to turn this into a suicide topic or anything .. i'm just curious where people draw their strength and drive to go on from. |
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autismfamily
Joined: 26 Jan 2008 Location: Los Angeles, CA
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| Posted: Mon Feb 11, 2008 12:49 am Post subject: |
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I know exactly what you mean and used despondent over rosacea in a google search and found a crisis forum.
I am so tired of it all and my face is getting worse plus my kids have been sick for a week and I dont want to leave the house and I dread going to sleep since my face will get worse.
My forehead is a disaster with crusty skin and my cheeks are tight and then the neck is so itchy and my hands are raw from eczema and the cuts on the fingers makes it hard to do dishes and then not knowing what to eat.
I started taking minocycline I had from a few months ago and still taking the hydroxycut for the weight gain from prednisone taken in Nov and Dec.
I turn 48 in April and feel like I am 65 already. The screams from my son set me off and cause more stress. It is just the three of us and I am so tired of it all. |
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qscott86
Joined: 04 Feb 2008
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| Posted: Mon Feb 11, 2008 1:39 am Post subject: |
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| I was out with a friend yesterday in a department store and saw my face in a mirror .. i felt so sick seeing the redness ... i had to go home ... i didn't even feel like staying out .. i hate feeling this way :-/ |
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melissawohl Forum Moderator

Joined: 08 Jan 2007 Location: new york
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| Posted: Mon Feb 11, 2008 1:47 am Post subject: |
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| qscott86 wrote: |
i wrote this topic about how people looking forward to living when they are so affected by this disease. frankly, somedays i feel like just giving up and ending it all .. i'm not trying to turn this into a suicide topic or anything .. i'm just curious where people draw their strength and drive to go on from. |
I draw my strength from my husband and my family and my good (true) friends. From people who know what's important in life and love me no matter what. I prefer to be around people who are nice and kind and sensitive anyway and this helps weed out the true friends from the superficial ones.
I also draw my strength from an inner peace that I have no matter what chaos is around me. I tend to be high energy and very type A yet I do have this inner peace where no matter what crisis I may be going through at the moment I still like who I am and respect myself enough to value myself and not feel badly when I don't look as perfect as I would like. It is not easy to develop this and takes time but when you have confidence in yourself because you like who you are rosacea will not destroy you.
There is too much in life to look forward to and too many wonderful occasions left to share. I love all the beauty that surrounds me (and I am not talking appearance). Beautiful music, beautiful people (on the inside), great art, nature, great books, etc. There is much pain in life but there is also much joy. It is all a part of life and once you can accept that and still feel good about who you are you can make peace with it and be content. And of course, never stop striving for relief but continuing to live your life and enjoying it while doing so.
My dad used to tell me when I was a little girl and upset about something that no one gets out of this life alive. I know it sounds funny but it did help me. Basically we are all going to die and why not make the most of what we do have while we are here? We can't control every aspect of our lives but lets make the best of what we can't control and change what we are able to. Everyone in life has something. No one's life is without tragedy, sadness, despair (and hopelessness at times). That is a fact. We are all touched by tragedy and sadness at one time or another. We go on because we realize there will be better times ahead. It is all cyclical. There would be no great joy without tragedy. There are no ups without downs. It is the nature of life. That is how I go on. I cherish the good times and manage to get through the tough times with the love and support of my loved ones. And this Forum is a part of that. Thanks everyone for being here.
Love,
Melissa |
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Twickle Purple

Joined: 26 Jun 2006 Location: BC
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| Posted: Mon Feb 11, 2008 5:58 am Post subject: |
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y'all knew I meant "how do you cope" right?
I'm a typo waiting to happen some days. _________________ Do what you feel in your heart to be right, for you'll be criticized anyway. You'll be damned if you do, and damned if you don't. – Eleanor Roosevelt |
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MARPUSBEAN
Joined: 26 Sep 2005
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| Posted: Mon Feb 11, 2008 12:37 pm Post subject: |
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You just have to keep on with the IPL nad any other things that will help, progress will be slow, but you will reduce the effects of your rosacea.
I got mine later in life, and thought " well I been there and done that, and I am older so I do not have big expectations, and I will put up with this"
Then I decided I would try everything and get a treatment regime.
Well I have had big improvements, but it has taken a few years.
It is no longer obvious I have rosacea, any discomfort is a lot less and I can live my life.
You keep at it and you will get there, it will never be 100%, but you will see real improvements!! |
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melissawohl Forum Moderator

Joined: 08 Jan 2007 Location: new york
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| Posted: Mon Feb 11, 2008 3:03 pm Post subject: |
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| Twickle Purple wrote: | y'all knew I meant "how do you cope" right?
I'm a typo waiting to happen some days. |
LOL Corinna, I didn't even notice your typo! I read it as you intended it and not what you actually wrote so I guess it's a perfect match  |
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