Red Light Clinical Trial at Hammersmith Hospital
Joined: 12 Jun 2005
Location: Iowa, U.S.
| Posted: Fri Jul 21, 2006 6:37 am Post subject: | |||||
I do think we've made ourselves abundantly clear on this issue--isn't that why this thread is important? We have very little clinical information on red light and its efficacy with rosacea. Only strong anecdotal reports from people that have used red light therapy for several months or years. We have no anecdotal reports of real "harm" coming from red light therapy. That's why this clinical trial is exciting! We may get some good data from it. I hope Tony Chu continues to pursue his studies in this area of light therapy.  _________________ 28 year-old male Erythmatotelangiectatic rosacea & Ocular 20 + laser treatments. Toleraine Soothing Light Facial Fluid for moisture, currently not using antibiotics. Using homemade red light LED array. Clonidine daily; klonopin sometimes. |
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Joined: 26 Sep 2005
| Posted: Fri Jul 21, 2006 9:48 am Post subject: | |
| All of these discussions do, once again prove, what a"personal" and tricky peoblem Rosacea is!
I could not recommend, on this site, that all rosacea sufferers apply a good mineral sunscreen and go out and do some light sunbathing. Yet I do it, and it improves my skin, and reduces flareups! For some people it would almost be suicide. All rosacea treatments appear to be almost patient exclusive, and that will be the case for RLT, some sufferers using RLT in a safe and careful manner will certainly see results. We have to push the envelope all of the time. Its why I have always been an advocate for having 2 forums, a Nase type forum full of scientific links, tightly monitered by a Nase type scientist. The second will be as we are now, where people will readily accept all kinds of ideas, and realise some people get results with treatments which others cannot deal with. |
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Site Admin
Joined: 07 Jan 2006
Location: Australia
| Posted: Fri Jul 21, 2006 10:29 am Post subject: | |
| Hi Marpusbean
I do like your level headed approach. I too believe that a little bit of sun is good for us but others would disagree with that. Of course, when I was taking antibiotics, the sun was my enemy but I am happy to say that I now love getting out in the sun. We are all so different and there have been many things brought to the table - some have been helpful and some have been a waste of money. So yes you are right, we do need to "push the envelope all of the time" because the standard 'fixes' for Rosacea simply don't cut it for many of us. Just out of interest, have you heard when Nase's forum will be up and running? It's been almost a year now. Jen _________________ Currently trying: Apr 06 Bee Wilder's Candida (natural healing) Diet; May 06 Home made red LED array; Aug 06 ZZ ointment. |
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Joined: 26 Sep 2005
| Posted: Fri Jul 21, 2006 1:36 pm Post subject: | |
| I gave my e.mail address as being an interested party, that was many moons ago.
Apart from what I read here I never heard another word, as has been said here many times before he seems to be constantly distracted by wanting to return to the debunking thing, so I really do not expected to hear any news at all. |
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Joined: 11 Jun 2005
Location: Philly
| Posted: Sat Jul 22, 2006 2:08 am Post subject: | |||
Two sources on here. You have the link that you can post again if you wish. Both Dr or Phd types. |
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Joined: 11 Jun 2005
Location: Philly
| Posted: Sat Jul 22, 2006 2:10 am Post subject: | |||
I know you don't care about Dr Nase's opinion but have you also disregarded Dr Crouch? |
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Joined: 11 Jun 2005
Location: Philly
| Posted: Sat Jul 22, 2006 2:26 am Post subject: | |||||
Your diction is astonishingly bad in your effort to create a "character" on the boards. As you remember, you made the claim that studies report material efficacy using tetracyclines and metrogel. ERGO, the questions posed by me. Don't pose ridiculous claims of tetracycline and metrogel if you provide the evidence to support your claims.
That is a risk you wish take. Good luck. Does not mean that others, given full information will be willing to take the same risk. In my opinion, both sides should be told and the risks should be enumerated as well as the potential benefits. Do you not share this opinion or do you wish fellow rosaceans make decisions based upon asymetric information? |
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Joined: 11 Jun 2005
Location: Philly
| Posted: Sat Jul 22, 2006 2:28 am Post subject: | |
| // | |
Joined: 13 Jun 2005
Location: UK
| Posted: Sat Jul 22, 2006 10:55 am Post subject: | |||
Hello Marpusbean Interesting what you about the sun as it used to be my biggest trigger but is no longer. The paradox was that although years ago it to spark rosacea off for me I also found after a few days in the sun it appeared to heal the damage and that's why I felt the original acne lamp could help me. We all know the sun in moderation has benefits and is essential for our well being so I for one will not avoid it but just apply commonsense when it comes to exposure time. If you are interested a good book to read is "The Healing Sun - sunlight and health in the 21st century by Richard Hobday ISBN 1 899171 97 5 RLT will do you no harm but again as with any treatment you follow the instructions and advice of others. My lamp uses fluorescent red tubes but if you are one of these sufferers who finds fluorescent lighting can be a problem then you should use LED. The Hammersmith trial is being carried out using an LED light source. Regards Peter |
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Joined: 12 Jun 2005
| Posted: Sat Jul 22, 2006 4:06 pm Post subject: | |
| No character creation going on here.
We have established that I am too lazy to trawl through Pubmed for information I know exists. The happy complacency of the righteous. We have established that you are happy to countenance anecdotal evidence when it suits you. We have established that you capitalise words from time to time. Rosaceans should weigh such information as they have before pursuing treatment options. They would do well to disregard information coloured with stupidity, cant and commercial interest. Good luck to you etc etc |
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Joined: 05 Aug 2006
| Posted: Fri Aug 18, 2006 10:07 pm Post subject: | |
| I'm glad theres a thread keeping track of this trial. I will bookmark this page and check back from time to time.
light therapy is being discovered to help treat so many diverse conditions, I really beleive that in the future it will be an indispensable tool. I have done some extensive research of light therapy did you know.. the first people to ever use light therapy was the ancient egyptians, indians and chineese? The ancient egyptians had "colour tombs" which was basically a part of their tomb that was fitted with coloured glass on the walls and ceilings which would illuminate the whole room that colour. The egyptians also used coloured silk clothing for healing properties aswell as coloured waters and gels (applied to their bodies) evidence suggests. http://www.ozelink.com/natures_energies/color1.htm I find it astounding how advanced the ancient egyptians was, even by todays standards! in many ways they was ahead of us. Of course recent research into light therapy being 'rediscovered' started out in denmark in around 1878 I beleive, but at the time the medical community disregarded it as quackery. Imagine if these early researchers was taken more seriously, just how much we woud know about light therapy 130 years later! Of course if the ancient egyptians knowledge of light therapy was never lost, then the technology would be thousands of years in the making! we should know all about it inside out in that time. Sorry for rambling  i'm just fascinated by history.
I hope all goes well with the trials in the autumn. Anthony |
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Joined: 26 Jun 2006
Location: Changing servers
| Posted: Mon Sep 18, 2006 6:29 am Post subject: | |
| Greetings Peter,
Any news on this front? Cheers, Twickle Purple _________________ I'm changing servers, links will be active again soon. |
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Joined: 13 Jun 2005
Location: UK
| Posted: Mon Sep 18, 2006 8:51 am Post subject: | |||
Hello TP No updates at the moment although I understand Tony has been on holiday and he did say last time I spoke to him that he wasn’t going to even attempt to start the trial until the holiday season was over. Not sure but I doubt we will hear that much in 06. I keep him updated with various threads from here and information from other sites plus when possible I forward him stories from people who have had success with RLT. Don’t worry as soon as I have any feedback I will post. Thanks Peter |
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Forum Moderator
Joined: 24 Apr 2006
Location: Dorset, UK
| Posted: Mon Sep 18, 2006 5:11 pm Post subject: | |
| Does anyone know what model Dr Chu is using. I found a link to this website http://www.androv-medical.com/product.php/22/1/ that is selling something that says was the same on trial at Hammersmith.
By the way the debate about postivie and negative effects of drug/procedures has long been recognised with in the medical profession. Ivan Illich recognised that there were negative consequences to medicine and the biomedical model and called it: iatrogenesis. The medical profession recognise that everything does harm as well as good and understand that every drug/procedure/test on the market will have some effect whether finacial, pschological, physiological or social. It comes down to the balance between good and bad. From my point of view I believe that you should expect all treatments to have a down side and be prepared to stop if they aren't working for you. I took moxonidine and clonidine and found them to have the exact opposite effect that they should have had. I am preparing to give RLT a go once I have gathered all the info and feel happy that I am reassured enough. I will also be listening to my body and if it tells me that its no good then I will stop. Sarah |
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Joined: 26 Jun 2006
Location: Changing servers
| Posted: Mon Sep 18, 2006 5:16 pm Post subject: | |
| I think you will find the downside to be confined to convenience and initial cost. Physically, as you will discover in your research, there are no negatives. _________________ I'm changing servers, links will be active again soon. |
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